I will be running in my (ALMOST haha) undies this February so we can get closer to kids growing up happy and healthy. Its easy to forget how blessed we are to wake up everyday and live without major health issues. For many adults and children, life is full of health obstacles- every February Cupid's Undie Run is a reminder to focus more on helping others and work together to fundraise for NF.
Neurofibromatosis, also known as NF, is a genetic disorder that affects 1 in every 3,000 people. There are three types of NF: NF1, NF2, and schwannomatosis. Neurofibromatosis type 1 (NF1), formerly known as von Recklinghausen NF or Peripheral NF, is the most common of the three types of neurofibromatosis, and is also one of the most common inherited neurological disorders, affecting about 1 in 3,000 people throughout the world. Softening and curving of bones, and curvature of the spine (scoliosis) may occur in some patients with NF1. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. While NF tumors are generally not cancerous, they may cause health problems by pressing on nearby body tissue. Sometimes a benign tumor may become malignant (cancerous), but most people with NF1 will never develop a malignant tumor. NF1 is usually diagnosed in childhood.
NO CHILD SHOULD HAVE TO GO THROUGH THIS and you can help. Any donation helps the Children's Tumor Foundation get closer to finding new treatments.
Donate or join our team of undie-clad runners. Your donation will provide critical funding for the research that will ultimately enable a cure.
Together, we can be the difference in the lives of children and help #endNF.